Another Place for Updates

While many will follow Facebook posts, I know many would like to know what's going on without searching it out on FB...I'll post those updates here as well

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Knox Gear

Friends - many have seen our "KNOX" gear recently and asked about getting it...We're happy to report that Play It Again Sports - Lynchburg, VA has put together a store online that you can purchase from...this is not a fundraiser for us, but a pretty cool way to simply show support and have others see it too!...our goal is threefold: 1) Give others the chance to wear stuff they've seen and asked for...2) Even though it's not a fundraiser, we're asking you to buy and wear, hoping that many will ask about what "Knox" means or who he is, and that his journey and his story will continue to go out, giving all of us a chance to proclaim God's glory through it and encourage others to get on board praying for him...3) Support Play It Again Sports - Lynchburg, VA as Jeff has been gracious to get this together and make it possible...note that the store is open until 2/21, then the order will be processed and ready for pick up...HOWEVER, there is a shippin...
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Knox Update - 3/3

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Knox Update 3/3 Thankfully, this past week or so has been an uneventful week to report on. We are at the point in our six week stay where trying to follow some sort of a daily routine is in focus. As far as medical reports go, Knox has only had to have bloodwork drawn a couple of times since the last post as part of his normal follow ups. All of his labs look fine relative to the treatment he’s received, so we are definitely thankful for that. For now,, our time is mostly spent making the morning Wawa run for some hazelnut coffee, then coming back to juggle times of Bible reading, school work, office work, legos, listening to Adventures in Odyssey, listening to other talk radio, playing some Fortnite, going to exercise, eating breakfast late enough to call it lunch, doing more work in the afternoons, figuring out dinner, catching a basketball game on TV (streaming sibling’s games from home and UVA when they’re playing), and finally ending with a couple hours of FaceTime with the fa...
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Knox Update - 2/14

Knox Update - End of Week 2 and it’s been a long eventful week. Knox had his bone marrow aspiration and lumbar puncture on Monday, requiring him to be put to sleep. Tuesday was Tcell day and he received his Tcell infusion. After infusion, there’s a window of time (10 days or so) where reactions can happen. By Wednesday evening, Knox had developed a fever that progressed quickly. There are limits that when the fever gets high enough, he has to go to the hospital. So we arrived at the Emergency Department around 9:30pm. We checked into an inpatient room at about 1:15am. The first time Knox had this done last summer, he developed a fever about 5 days after, stayed in the hospital 3 nights, then had been long enough without a fever that he could go home (back to where we’re staying). This time, his fever came quickly and has been stronger and more persistent. The fever actually went away Thursday night and was gone all day Friday, but Friday night it came back strong and continue...
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