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Showing posts from March, 2021

Knox Update - 3/22

Knox Update 3/22 Knox got home from PA last Tuesday night.   We are very glad to be back home and enjoying normal life.   Knox is feeling great, is back at school, and has spending his time doing normal kid things.   Before we left PA last Tuesday we received the bone marrow biopsy results.   We are so thankful to report that there are no signs of active leukemia!   His tests have been clear for a good while now and we praise the Lord for that.   However, while that is great news, there is also some disappointing news.   The t-cells he received are designed to get rid of all b-cells (remember that everyone has b-cells, these are normal, but that leukemia is also a type of bad b-cell).   At this point he shouldn’t have any b-cells, however, he already has healthy b-cells that have returned.   Having healthy b-cells does not mean that leukemia has come back.   Remember, all of his tests have been clear of leukemia for a while now.   T...

Knox Update

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Knox Update -  First, thank you to everyone showing us your Knox gear.  It’s a joy to see so many people wearing it and we know so many are praying for us and for Knox.  As we have stated, we hope it causes you to pray, causes others to ask about it, and that Christ will be exalted. Tomorrow is the day-28 bone marrow biopsy and spinal fluid check.  In addition to looking for any detectable amounts of leukemia, they are looking to see if there any bcells present, good or bad.  The CART cells are designed to get rid of all bcells and so the presence or absence of bcells is the indicator of whether the tcells he received are active.  You’ve been praying for the tcells to work and we are praying, specifically, that there are no bcells present in addition to no leukemia.  Once we get these results over the following few days, we’ll know what’s next.  We are praying that essentially nothing is next, and that all that will be required is more follow up l...

Knox Update - 3/3

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Knox Update 3/3 Thankfully, this past week or so has been an uneventful week to report on. We are at the point in our six week stay where trying to follow some sort of a daily routine is in focus. As far as medical reports go, Knox has only had to have bloodwork drawn a couple of times since the last post as part of his normal follow ups. All of his labs look fine relative to the treatment he’s received, so we are definitely thankful for that. For now,, our time is mostly spent making the morning Wawa run for some hazelnut coffee, then coming back to juggle times of Bible reading, school work, office work, legos, listening to Adventures in Odyssey, listening to other talk radio, playing some Fortnite, going to exercise, eating breakfast late enough to call it lunch, doing more work in the afternoons, figuring out dinner, catching a basketball game on TV (streaming sibling’s games from home and UVA when they’re playing), and finally ending with a couple hours of FaceTime with the fa...