Knox Knocks Cancer

Knox Update (CHOP Day 2) - Knox is in clinic for Day 2...yesterday and today mirror each other and requires a good amount of time in clinic for a couple of chemo infusions and for lots of fluids...yesterday was smooth and uneventful...today has been the same so far...tomorrow and Thursday will be more chemo infusions, but should be shorter days....Thursday will include sedation for a LP and Bone Marrow aspiration to get a baseline for that state of his Leukemia...we know, per his care at UVA, that the state of his disease is in remission, but we pray these tests will continue to reveal the same situation... The first night was trying for Knox being in a new place that looks nothing like what we're used to...the last time I looked at the clock I saw 1:52am and he was still physically shaking and twisting his blanket around his finger (nervous indication) as the street sounded a bit like a drag strip for motorcycles...last night was a bit better...after clinic yesterday, we crossed o...

Knox Update...It's been about a month since the last update and we are speeding towards the next major step in his treatment plan. Since the last update we have gotten results that Knox's bone marrow is in remission. This is not to say there isn't any Leukemia there, but it is currently below detectable limits. This wasn't the stated goal of his current treatment, but it was something that we and you all joined us in praying for and God blessed us with that result!! Praise be to God!! Tomorrow, Knox has his next LP at UVA and will receive chemo both through and infusion and into his brain/spinal cord space. This usually affects the way he feels for a few days and soon he will also start a new week of oral steroids. These are the ones that really affect his mood. You may remember that we are marching toward immunotherapy (CAR-T) at Children's Hospital of Philadelphia and have been waiting for his T cells to be prepared to recognize the Leukemia in his body in ...