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Showing posts from February, 2021

Knox Update - 2/20

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Knox Update - Week 3 As we get to the end of week 3, I wanted to pass along an update from Philly. At the end of last week, Knox was in the hospital with high fevers. The fevers finally subsided and went away completely, allowing us to leave on Tuesday after a 6 night stay. We are thankful for our warm and comfortable townhouse and, while we are very thankful for the care he received, we are glad to be out of the hospital. He has continued to progress back to full strength. To this point, all tests have come back negative for disease. We pray for this continually and thank you all for calling out to the LORD on his behalf. We continue to pray for these Tcells to last for a long time, reaching and destroying every last blast cell that may be left. From here on out, the clinic visits are not as many and often, but he'll still get bloodwork checked once or twice a week. We are schedule to be here until March 16th and he'll have another bone marrow aspiration and lumbar pu...

Knox Update - 2/14

Knox Update - End of Week 2 and it’s been a long eventful week. Knox had his bone marrow aspiration and lumbar puncture on Monday, requiring him to be put to sleep. Tuesday was Tcell day and he received his Tcell infusion. After infusion, there’s a window of time (10 days or so) where reactions can happen. By Wednesday evening, Knox had developed a fever that progressed quickly. There are limits that when the fever gets high enough, he has to go to the hospital. So we arrived at the Emergency Department around 9:30pm. We checked into an inpatient room at about 1:15am. The first time Knox had this done last summer, he developed a fever about 5 days after, stayed in the hospital 3 nights, then had been long enough without a fever that he could go home (back to where we’re staying). This time, his fever came quickly and has been stronger and more persistent. The fever actually went away Thursday night and was gone all day Friday, but Friday night it came back strong and continue...

Knox Gear

Friends - many have seen our "KNOX" gear recently and asked about getting it...We're happy to report that Play It Again Sports - Lynchburg, VA has put together a store online that you can purchase from...this is not a fundraiser for us, but a pretty cool way to simply show support and have others see it too!...our goal is threefold: 1) Give others the chance to wear stuff they've seen and asked for...2) Even though it's not a fundraiser, we're asking you to buy and wear, hoping that many will ask about what "Knox" means or who he is, and that his journey and his story will continue to go out, giving all of us a chance to proclaim God's glory through it and encourage others to get on board praying for him...3) Support Play It Again Sports - Lynchburg, VA as Jeff has been gracious to get this together and make it possible...note that the store is open until 2/21, then the order will be processed and ready for pick up...HOWEVER, there is a shippin...

Knox Update - 2/7

Knox Update - End of week 1 here in Philly...Clinically, everything went according to plan...a drive through the snow storm on Monday...6 chemo infusions over the next 4 days...a weekend of nausea (that's gotten better throughout today in time for Super Bowl pizza)...tomorrow we start another long week with Knox being sedated in the morning for a lumbar puncture and bone marrow aspiration...this will tell us where his disease is as a starting point before his T cell infusion on Tuesday...to this point, since last summer, Knox's bone marrow has been below the detectable limits and we pray that it still is...as mentioned, he gets his T cells on Tuesday...we go back Wednesday for some follow up blood work, then again on Friday...the week or so following the T cell infusion is the prime time for any reactions he may have, if any...the first time he got T cells last summer, he did develop a fever and was admitted as inpatient for a few days, so we'll see...again, clinically, eve...